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Elin Hjorth

Palliative Research Centre


PhD Student


+46-76-636 51 01 


Address: Ersta Sköndal Bräcke University College
P.O. Box 11189, SE-100 61 Stockholm, Sweden


Folkungatatan 121

Research Area

In my doctoral project I investigate experiences of living with severe Spinal muscular atrophy (SMA) (Type I-II). SMA affects children and the disease is characterized by progressive muscle weakness. No present curative treatment is available. Affected families face a life with daily care and nursing, recurrent hospitalizations and difficult decisions regarding the child's treatment, including the decision if/when respiratory support should introduced. The project includes both the parents' experiences of care, and the child´s and the family’s experience of living with the disease. With increased knowledge, the hope is to contribute to a better care for ill children and their families.


2014 CNS in Children & Youth Health Care
2014 MSc in Nursing
2010 RN


Professor Ulrika Kreicbergs, Ersta Sköndal Bräcke University College
Associate Professor. Malin Lövgren, Ersta Sköndal Bräcke University College
Professor Thomas Sejersen, KI

Senast uppdaterad: .


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