Professor, PhD, RN Gålö
in Palliativ Care of Children
+46-766-36 51 21
Adress: Palliative Research Centre
Ersta Sköndal Bräcke University College
P.O. Box 11189, SE-100 61 Stockholm, Sweden
My research is focused on the child in palliative care, both as patient and next-of-kin, and their families. The child’s voice is seldom heard in medical research except through parents and health care staff.
My research is based on three main methodological principles. One is a study design which includes both the seriously ill and the family. Another is that factors contributing to suffering beyond bereavement are identified in a qualitative phase through interviews. This is expected to disclose potential harmful factors in the healthcare and family system that can be modified or avoided to improve quality of life for the child and the family. The third is to gather quantitative data, preferably through nationwide questionnaires, for statistical analysis permitting determination of the impact of the different identified factors.
In addition to my research, I have initiated the formation of a national network for paediatric palliative care in Sweden aiming at exchanging experiences between different centres. This is anticipated to provide common basic guidelines for children with palliative care needs. Moreover, an educational program is under development.
My task within paediatric palliative care also includes teaching and guidance of doctoral students. Currently four projects are ongoing under the supervision of me and my co-workers Anette Alvariza, Malin Lövgren and Josefin Sveen, all PhDs. For further information of the projects see the PhD-students descriptions; Rakel Eklund, Elin Hjorth, Lilian Pohlkamp and Megan Weber. I am also involved in collaborative projects and education with institutions in Denmark and Norway.
Beyond the means from Ersta Sköndal Bräcke University College my current research is supported by Gålö Foundation, The Erling Persson Family Foundation, The Kamprad Family Foundation for Entrepreneurship, Research and Charity and Freja Foundation.
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Senast uppdaterad: 2019-06-11.
Box 21062, SE-418 04 Göteborg
Fax: +46 31 53 15 51
Box 11189, SE-100 61 Stockholm
Fax: +46 8 555 050 60
Herbert Widmans väg 12
Box 441, SE-128 06 Sköndal
Fax: +46 8 555 051 65
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