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Elin Hjorth

Palliative Research Centre

TitLE:

PhD Student

PHONE:

+46-76-636 51 01 

Fax: +46-8-555 050 60

E-MAIL:

Address: Ersta Sköndal Bräcke University College
P.O. Box 11189, SE-100 61 Stockholm, Sweden

VISITING ADDRESS:

Folkungatatan 121

Research Area

In my doctoral project I investigate experiences of living with severe Spinal muscular atrophy (SMA) (Type I-II). SMA affects children and the disease is characterized by progressive muscle weakness. No present curative treatment is available. Affected families face a life with daily care and nursing, recurrent hospitalizations and difficult decisions regarding the child's treatment, including the decision if/when respiratory support should introduced. The project includes both the parents' experiences of care, and the child´s and the family’s experience of living with the disease. With increased knowledge, the hope is to contribute to a better care for ill children and their families.

Degrees

2014 CNS in Children & Youth Health Care
2014 MSc in Nursing
2010 RN

Supervisors

Professor Ulrika Kreicbergsexternal link, Ersta Sköndal Bräcke University College
Associate Professor. Malin Lövgrenexternal link, Ersta Sköndal Bräcke University College
Professor Thomas Sejersenexternal link, KI

Senast uppdaterad: 2017-03-10.

Contact

Ersta Sköndal Bräcke University College
www.esh.seexternal link
info@esh.se 
Phone: +46 8 555 050 00

Campus Bräcke
Diakonivägen 10A
Box 21062, SE-418 04 Göteborg
Fax: +46 31 53 15 51    

Campus Ersta
Stigbergsgatan 30
Box 11189, SE-100 61 Stockholm
Fax: +46 8 555 050 60

Campus Sköndal
Herbert Widmans väg 12
Box 441, SE-128 06 Sköndal
Fax: +46 8 555 051 65

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