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Space & place in end of life care

Aim

The aim of this project is twofold. First, there is an aim to better understand how the dying person, family and staff experience the space and place in which and dying occur. Second, there is a methodological aim to explore how co-design can be used to examine central concepts further in order to develop interventions. These goals will be achieved through addressing central research questions, such as: ”How is space and place related to central concepts of importance in death and dying?” and ”How can design tools (e.g. visual triggers and participatory workshops) be utilized to explore these central concepts and demands further?”

Rationale

There is a lack of research on the experience of settings for dying and death, particularly, from a place-centered perspective rather than as a physical space. Even less attention has been paid to how such settings can support death and dying being understood as a meaningful experience, in line with one’s own life and history. However, recent reviews and research on health care design more generally found a growing body of robust studies indicating that the physical care environment can reduce stress and promote well-being. This doctoral project will use the integration of design to engage the dying person, staff and families in joint processes and interventions in these settings.

Significance

The intersection between death as a difficult personal experience, the need for a more widespread knowledge of palliative care and its relation to space and place in EoL care represents a research gap. As a way to approach this gap, this project is theoretically and methodologically influenced Bate’s and Robert’s Experience-based Co-design. Bate and Robert point to the limits of the concept “patient-centredness” in being able to adequately drive the changes required in designing all aspects of today’s health care system, arguing that whereas “the traditional mindset” places patients in a passive role, based on listening and responding to ideas generated by others, proactive influence which challenges this hierarchy is instead a key to change.

The project plan combines two lines of prior work underlying “Space and Place” into a joint concerted effort. One line of work involved collaboration with the Experience Design (ED) Group at Konstfack, Stockholm, in developing interventions to enhance the experience of space and place for death and dying. The other line consists of empirical research, financed by a one-year grant from PICK-UP (ALF SLL) investigating the experiences of space and place in settings providing EoL care from the perspectives of users, that is, the dying person, family members, and staff.

Senast uppdaterad: 2017-01-27.

Forskningsenhet/inriktning: Palliativt forskningscentrum
Projektstatus: Avslutat

Läs mer om forskningsenheten

www.palliativtforskningscentrum.se

Kontakt

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